What was this disease that the doctors discovered Charnette
living with? MNGIE....(Mitochondrial Neurogenic Gastrointestinal Encephalopathy). The infamous, yet rare disease, resulted
in fewer than 100 confirmed laboratory cases.
MNGIE disease has caused many of Charnette's organs to become
paralyzed. Her Appendix, Gallbladder, Colon, and her Small Intestines have all been affected by this disease. Charnette has
undergone many major surgeries, such as Open heart surgery, Total Colectomy, and partial removal of her Small Intestines.
Charnette currently has a Jejunostomy tube, for feeding, a Gastrostomy tube for drainage, and a Power-Port that has been placed
in her chest for TPN (Total Perenteral Nutrition). Charnette also has to receive frequent IV antibiotics, and Blood transfusions
due to recurring blood infections, and low blood counts. Charnette's medical condition has often led to long hospital stays,
and she has developed personal relationships with doctors, and staff, who have become her second family.
THERE IS NO KNOWN CURE. However,
recent treatment reveals the infusions of bloood cells are helpful with controlling the diease. Adjacent to the symtoms to
the left, there is more to this unusual disease. Sounds like a great deal to handle, right? Just wait, there is more.....
decison had to be made in 2003. She was faced with Open-heart surgery due to an infected internal organ. From April 2008 to
September 2008, Charnette was only in her home 25 days approximately. Though any long hospital stays, she has now
become the branch of another tree. Again, it was said that there is no known cure. Several options have been explored, including
Intestinal Transplants. However, even that option puts Charnette at a higher risk than treating her condition. She has endured
several consultations with many renowned surgeons in the field of Intestinal Transplantation. The doctors have all deemed
the transplant surgery to be an even higher risk. Despite all odds, Charnette continues on with her fight to live.
'Little Soldier' by her friends, and family, Charnette is a brave soul who is determined to LIVE her life to the fullest.
Through all of her medical challenges she still finds time during her frequent hospital stays to advocate for people with
chronic illnesses, and to encourage others with words of strength, determination, and wisdom.